Data Sharing Resources

Under a Healthy Students, Promising Futures technical assistance contract, Rebecca Gudeman from the National Center for Youth Law developed this tool (Appendix C) to support efforts to share school health information and data for the HSPF state team in Colorado.

Also see:
Main Tool: Legal Guide to School Health Information and Data Sharing in Colorado
Appendix B: A Quick Reference Chart to Confidentiality Laws

Under a Healthy Students, Promising Futures technical assistance contract, Rebecca Gudeman from the National Center for Youth Law developed this tool (Appendix B) to support efforts to share school health information and data for the HSPF state team in Colorado.

Also see:
Main Tool: Legal Guide to School Health Information and Data Sharing in Colorado
Appendix C: A Quick Reference Chart to Confidentiality Laws

Under a Healthy Students, Promising Futures technical assistance contract, Rebecca Gudeman from the National Center for Youth Law developed this tool to support efforts to share school health information and data for the HSPF state team in Colorado.

Also see:
Appendix B: Colorado Minor Consent and Confidentiality Laws
Appendix C: A Quick Reference Chart to Confidentiality Laws

This comprehensive guide provides background on school-based Medicaid and outlines various opportunities to advance state policy changes required to access federal funds. It is designed for anyone working to expand access to school health services, including state and local education agency staff, state Medicaid agencies, school health providers, public health professionals and children’s health advocates.

Rebecca Gudeman, National Center for Youth Law

The California School-Based Health Alliance produced this resource guide on navigating the complex interactions of HIPAA and FERPA in school health programs, including school health centers, school-based mental health programs, school nursing services, and other types of health services delivered on school campuses.

Published as part of ASTHO's Public Health and Schools Toolkit, this issue brief examines the interplay of federal laws related to privacy and disclosure of student health information, and various approaches for obtaining student health information.

This Primer provides an overview of the pertinent federal and state confidentiality laws when health care is provided on school sites and addresses a few frequently asked questions regarding sharing information.

The Department of Health and Human Services (HHS) maintains a robust FAQ on FERPA and HIPAA and related privacy issues concerning students and schools.

The U.S. Department of Education offers a FAQ and numerous resources and best practices related to the Family Educational Rights and Privacy Act (FERPA) and the Protection of Pupil Rights Amendment (PPRA).

The U.S. Department of Education and the Office for Civil Rights at the U.S. Department of Health and Human Services released updated joint guidance addressing the application of the Family Educational Rights and Privacy Act (FERPA) and the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to records maintained on students.

The guidance, which was first issued in November 2008 and last updated in December 2019, clarifies for school administrators, healthcare professionals, families and others how FERPA and HIPAA apply to education and health records maintained about students. The revised guidance includes additional frequently asked questions and answers addressing when a student’s health information can be shared without the written consent of the parent or eligible student under FERPA, or without written authorization under the HIPAA Privacy Rule.

To reduce paperwork and streamline business processes across the health care system, the Health Insurance Portability and Accountability Act (HIPAA) of 1996 and subsequent legislation set national standards for electronic transactions, code sets, unique identifiers and operating rules. This regulation text was published in 2013 by the U.S. Department of Health and Human Services Office for Civil Rights.